Am I correct in suspecting that you're not in an urban area? Given all the complications you've already had, have you considered going to a major teaching/research medical center? Might be worth any inconvenience.
(Forgive me if I'm way off track. I don't remember all the details you've posted before, mostly that this has been going on and on and is complicated and painful. And I feel bad for you.)
(Forgive me if I'm way off track. I don't remember all the details you've posted before, mostly that this has been going on and on and is complicated and painful. And I feel bad for you.)
I remembered your saying "the best", but I wasn't sure of the context. Was worried that maybe you were in some rural area with few specialists where "best" wouldn't have been saying much. Sorry.
).