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Fibromyalgia

Deranged Nasat

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I'm riding some pretty strong emotional waves at the moment, because I've finally made a breakthrough regarding a long-standing medical problem. I've been given some reasonably extensive information on Fibromyalgia, which it's now believed I most likely suffer from. It's a condition I had somehow never heard of but which fits perfectly the various physical difficulties I've been having since my mid-teens.

For some years now, I've experienced feelings akin to ongoing electric shocks; stabbing pains, throbbing "pins and needles" sensations across my entire body, the feeling that I'm "heavy" or clogged up with electricity, apparent stiffness and joint pains, ultrasensitivity to external stimuli. A sense that my body's on fire, or that there's a "tightness" in my neck or head, like a vice. These weren't constant, but came and went. I recognized certain patterns - activities that would set it off, after which I'd slowly recover over a period of days to weeks, then feel fine until the next incident. Said incidents, though, became more common and more serious over time. It often makes it very hard for me to function normally. In addition to the aches and pains, there's fatigue, a general exhaustion that isn't improved by sleep and which strikes regardless of how little physical exertion I've been doing, there's also an inability to concentrate or think clearly, as if my mind is "foggy". The most frustrating thing is that according to all medical tests I was - and am - in absolutely perfect physical health; there was no clear explanation for what was happening, and the question I had to keep asking was "if I'm in such great health, how and why am I feeling so terrible?"

Fibromyalgia has the answers, apparently. What's also interesting is that it's very often comorbid with psychological conditions like depression (which I was diagnosed with) and PTSD (which it's been suggested I might have), and one of the theories regarding its cause is stressful conditions in childhood or adolescence, conditions that also encourage the manifestation of psychological problems. I've been getting help of late with the possibility or probability that my depression/psychological concerns are a form of bipolar, and so this is rather interesting, because stressful conditions earlier in life is thought to be one of the bigger risk factors for that, too.

It's been frustrating these last few years, both not having answers for what was happening to me and finding myself distracted from either my physical or mental problems by interference from the other. Now, though, I feel as if I've finally got a sense of the overall picture, and can start coming to grips with both. I have a name and an explanation of sorts for my physical concerns and I'm learning to understand the psychological ones. As some of you might remember, not too long ago I realize something I'd forgotten - that my life was worth living and enjoying. Facing the conditions that make it difficult for me to live up to that knowledge has caused some frustration of late, but I'm hoping that this is another positive step towards reclaiming myself.

Anyhow, thanks for reading. :)
 
Sorry to hear this, "conditions" can suck.

Do you have any ideas on the cause of this aside from the theoretical ones?
 
Sorry to hear this, but it's good to have an explanation. But have they said anything about how this can be treated?
 
Sorry to hear this, but it's good to have an explanation.

Definitely. :) I'm slightly amazed that it took this long to find one - apparently Fibromyalgia isn't that uncommon, so I'd have thought I'd have at least heard of it.

And while it may seem a little ridiculous that I apparently have both a psychological and a physical condition (it certainly seemed so to me), from the information I've been given it's thought that long-term stress encourages the manifestation of both if you're genetically or otherwise at risk. So, actually, it makes some sort of sense that I have both conditions; it isn't some ludicrous coincidence, the two are likely "related" - both consequences of the same experience. And that's somewhat a relief. I feel less like my body and mind are randomly going haywire on me; I know now that there's an underlying logic behind it all.

But have they said anything about how this can be treated?

That will come up during my next appointment at the clinic, no doubt. From what I've read, it can be tricky to find the right variety of treatments, because the symptoms are variable in how they manifest, and you tend to have to try a few to see what works for you. Some drugs, like muscle relaxants, might be used to ease the more controllable physical problems. I might end up seeing a rheumatologist or a neurologist...apparently, it's one of those conditions that isn't totally understood and sort of floats between the usual categories. Mostly it seems a case of adapting your lifestyle to deal with it, which is sort of unavoidable anyway. But of course we don't all have the same degree of support or the freedom to rearrange our lives to account for this sort of thing, so I'll have to see how it goes.

Thanks for the interest, by the way. I know I have a tendency to periodically post lengthy accounts of my personal problems, which I imagine can be a bit tiresome. But I felt I needed to "announce" this.
 
Of course I'm interested. :) Keep posting updates as things develop. Hopefully they'll find the right balance of treatments quickly. :bolian:
 
I'm sorry to hear your news but know the relief a diagnosis to a long suffered illness can bring. I'm sending you healing vibes and a big squish!
 
I'm so glad you have a name now for some of what's been going on. I hope they come up with effective treatment quickly!
 
I can only imagine the relief at having some idea of what has been going on, finally. I'm just a little concerned that you won't get all the answers you want from this diagnosis. Like you said, there's still a lot that's not known about fibromyalgia and there's no cure. I hope you find a treatment that alleviates some of your symptoms though. It can't be an easy thing to live with.
 
Fibro sucks. I've had it (diagnosed anyhow) for around 20 years.

Bear in mind that symptoms of this are similar to that of rheumatoid arthritis.

Hope they find good solutions to help you live with this. It's a pain, but one can still have a decent life.
 
It's good to know the name of your enemy - now you know how to fight :)

I hope one of the available treatments will help you.

And I don't find your posts tiresome. If you need to get something off your chest or simply share something, we're (or at least I am) here to listen :)
 
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