GemHaters
Captain
^This. I'm getting more help and support here than I have anywhere else.
You seriously remind me of someone...I feel like I know you somehow...
Doctor Says I Have A Neurological Disorder...
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^This. I'm getting more help and support here than I have anywhere else.
You seriously remind me of someone...I feel like I know you somehow...
GemHaters
Captain
I'd definitely say continue to get qualified medical opinions to make sure you are a) sure of the diagnosis and b) abreast of all current developments and possible treatments and clinical trials.
Getting your financial affairs in order is not a bad idea--not just when you know there is a serious medical condition, but in any circumstances, because none of us know when an accident or other sudden death could occur. So it would probably just be good to go ahead and handle that on general principle.
Now, from your post, I can't tell whether we're talking about, multiple sclerosis, ALS (Lou Gehrig's disease), or a less common condition--but you should probably also make provisions for long-term care. You may have been told a certain time frame, but at least in the case of ALS, certain people have been known to completely defy all expectations as to how long they were "supposed" to live (Stephen Hawking, for instance). There's no need for you to share what you've been diagnosed with, but that is a point to consider--doctors can provide probabilities but they cannot provide certainties.
You might also want to network with other people who have your specific diagnosis. Even the most uncommon disorders tend to have Internet communities.
But from a less pragmatic standpoint...it's not just important to get out of your life what you want, but to give all that you want to give, while you have the opportunity. You mentioned you are religious...it might not be a bad idea to look into service opportunities, while you are able to do so, maybe even multiple things you can do at various physical ability levels. Giving back is not only something that Christians and people of many other faiths are called to do--it can be good for you psychologically and physically too. It doesn't have to be on a "big" scale; such opportunities can exist both within the community and within your circle of friends and family.
Just my two cents.
Getting your financial affairs in order is not a bad idea--not just when you know there is a serious medical condition, but in any circumstances, because none of us know when an accident or other sudden death could occur. So it would probably just be good to go ahead and handle that on general principle.
Now, from your post, I can't tell whether we're talking about, multiple sclerosis, ALS (Lou Gehrig's disease), or a less common condition--but you should probably also make provisions for long-term care. You may have been told a certain time frame, but at least in the case of ALS, certain people have been known to completely defy all expectations as to how long they were "supposed" to live (Stephen Hawking, for instance). There's no need for you to share what you've been diagnosed with, but that is a point to consider--doctors can provide probabilities but they cannot provide certainties.
You might also want to network with other people who have your specific diagnosis. Even the most uncommon disorders tend to have Internet communities.
But from a less pragmatic standpoint...it's not just important to get out of your life what you want, but to give all that you want to give, while you have the opportunity. You mentioned you are religious...it might not be a bad idea to look into service opportunities, while you are able to do so, maybe even multiple things you can do at various physical ability levels. Giving back is not only something that Christians and people of many other faiths are called to do--it can be good for you psychologically and physically too. It doesn't have to be on a "big" scale; such opportunities can exist both within the community and within your circle of friends and family.
Just my two cents.
I'm sorry to hear that. It must be rather scary to hear news like that, so I can only understand you wanting to reach out. It's only natural. It would suck losing anybody, no matter what.
That said, I agree with those who mention seeing several specialists before deciding on anything. I have a sister who's had a rare form of cancer around the eye, and she had seen lots of different specialists before making a decision. In the end, she beat the cancer and she constantly goes back to get checked. But it wouldn't be the first time someone were wrong about something. Sometimes a doctor can miss something or entirely misdiagnose it, or have different opinions on what something is. I've personally seen it happen, even on very small issues, so that's why it's important to get a consensus.
And to add to what Holmes was saying, the mind can be a powerful tool. A bit of positive thinking can go a long way. I've heard of people managing to beat something due to their positive outlooks.
Good luck. I hope you pull through this. In any case, do something that puts a smile on your face.
That said, I agree with those who mention seeing several specialists before deciding on anything. I have a sister who's had a rare form of cancer around the eye, and she had seen lots of different specialists before making a decision. In the end, she beat the cancer and she constantly goes back to get checked. But it wouldn't be the first time someone were wrong about something. Sometimes a doctor can miss something or entirely misdiagnose it, or have different opinions on what something is. I've personally seen it happen, even on very small issues, so that's why it's important to get a consensus.
And to add to what Holmes was saying, the mind can be a powerful tool. A bit of positive thinking can go a long way. I've heard of people managing to beat something due to their positive outlooks.
Good luck. I hope you pull through this. In any case, do something that puts a smile on your face.
Don't waste your time. I promise I don't know you. I don't know any internationals
Sometimes Nick reminds me of Dwight Schrute from the US The Office. Maybe that's it GemHaters. I often hear his posts in Dwight's voice.
Wow, I'm sorry, Gem.... what a shock. I agree with everyone else, just get as many opinions as possible, and always question their findings. Always keep pushing for more answers.
Also, don't feel bad about people questioning whether it's true or not. It really does happen everywhere online. It's nothing personal against you. It's happened at nearly every forum I've been a member at, now that I think of it.
I have no idea what I would do if that were to happen to me. I guess.... the biggest things on my mind, as I think on it... would be to make sure I was right with God, at least as right as one can be, and to make things right with certain people. People who have hurt you, or whom you have hurt. Or people you don't see as much as you should. That's all I would be thinking about.
I'm sure I'd record personal videos for everyone, too... put them on Youtube. Hmmm.... a trip to England would be in order for me as well.
Best of luck to you.....*hug*
Also, don't feel bad about people questioning whether it's true or not. It really does happen everywhere online. It's nothing personal against you. It's happened at nearly every forum I've been a member at, now that I think of it.
I have no idea what I would do if that were to happen to me. I guess.... the biggest things on my mind, as I think on it... would be to make sure I was right with God, at least as right as one can be, and to make things right with certain people. People who have hurt you, or whom you have hurt. Or people you don't see as much as you should. That's all I would be thinking about.
I'm sure I'd record personal videos for everyone, too... put them on Youtube. Hmmm.... a trip to England would be in order for me as well.
Best of luck to you.....*hug*
GemHaters
Captain
Once again, thank you all for your concern and condolences. I'm heading out to Arizona this week to see a neurologist that has more experience than the one I am currently seeing. I've already spoken with him and he said he doesn't see any reason why he shouldn't be able to fix the problem.(Hope that made sense, these pills are making me loopy. lol) He says that within six months he should have the problem fixed, but of course something can always go wrong. I'm not being negative about it, I just don't want to get my hopes up, y'know?
On a different note, unfortunately I'm still bumming over my.....I want to call him my ex, but he informed me that I never belonged to him, so I'm not sure what to call him. I bring him up simply because when I told him about my current problem he basically said I was lying to get sympathy. This is the guy that I love apparently.....
On a different note, unfortunately I'm still bumming over my.....I want to call him my ex, but he informed me that I never belonged to him, so I'm not sure what to call him. I bring him up simply because when I told him about my current problem he basically said I was lying to get sympathy. This is the guy that I love apparently.....
Real supportive guy. I'm glad he's your ex (or your "never was").
This new neurologist sounds promising. Yes, something can always go wrong, but hopefully the important stuff will go right.
This new neurologist sounds promising. Yes, something can always go wrong, but hopefully the important stuff will go right.
GemHaters
Captain
Isn't that most men though? Minus the one's from this board that have been super supportive. lol.
Indeed. I'm crossing my fingers so much they're starting to hurt.
No, it's not. There has been nothing normal or okay about the way you've described your ex-boyfriend's behavior. The guy is a creep.
GemHaters
Captain
Mmm...Not a creep, just not ready for a serious relationship I think....
I'm done with men completely, but that aside, if I ever again get the delusion that I want a relationship, I think I'll go with someone more my age....
Sorry, but you don't have to ready for a "serious relationship" to be supportive of someone. He doesn't even seem to know how to be a friend.
GemHaters
Captain
Oy vey, you said it. It reminds me of something Catherine Zeta Jones' character in The Terminal said....something along the lines of "I keep ingesting these poisonous men until I make myself sick"....
I'm actually talking to him online as of this moment...feeling like shit, as I always do....but I can't give it up....I don't know how...
Even if it turns out -- as we hope it will -- that you are not terminally ill, do you really want to be spending your time with someone who makes you feel like shit?
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