Know anybody with Keratoconus?

[Training]

I need to know if you guys know anybody who have this condition. Are they able to lead a normal life?

 

[gturner]

Never heard of it, so I had to look at the wiki for it, which says most patients lead a normal life.

Sadly, as a TrekBBS member, you obviously weren't going to lead a normal life anyway.

 

[Training]

lol that is true. Some people find it funny when I laugh out loud at something i read on the pc. When I try to explain to them it just comes across has sad.

 

[Australis]

Me.

Was diagnosed some years ago, and it was progressing relatively quickly through my twenties and thirties, then slowed to a crawl in my forties, it's hardly changed in the last ten years (now 51).

It all seems to be okay. The optometrist advised to rub my eyes as little as possible. I wear glasses, but that's for astigmatism. There is still a chance that I may eventually have to have a cornea transplant, or a hard lens transplant - the optometrist said by my fifties, when it was first diagnosed, but now, it seems to be a lot further away. Maybe by the time I need it, we'll have nanoboits that can fix it (see the Singularity).

But, in a nutshell, I try not to rub my eyes, and it's hardly noticeable. Certainly nothing like the pic in the Wiki article.

 

[Training]

Me.

Was diagnosed some years ago, and it was progressing relatively quickly through my twenties and thirties, then slowed to a crawl in my forties, it's hardly changed in the last ten years (now 51).

It all seems to be okay. The optometrist advised to rub my eyes as little as possible. I wear glasses, but that's for astigmatism. There is still a chance that I may eventually have to have a cornea transplant, or a hard lens transplant - the optometrist said by my fifties, when it was first diagnosed, but now, it seems to be a lot further away. Maybe by the time I need it, we'll have nanoboits that can fix it (see the Singularity).

But, in a nutshell, I try not to rub my eyes, and it's hardly noticeable. Certainly nothing like the pic in the Wiki article.

I've got astigmatism as well. I'm wearing glasses but so far it only helps my sight in one eye. The other one is apparently gone over the hill. They are going to give me scleral contacts. I wasn't told anything about rubbing my eyes but I have found that on the net. So I try to avoid it. How ever when i think about rubbing my eyes my eyes start to itch and i feel the urge to rub it. Which is very annoying.


Is it possible for this thing to make our eyes so bad that everything is a 100% blur?

 

[Australis]

Yeah, but these days it's also correctable, with contact lenses and glasses and whatnot, but at the extreme end of things it would be surgery, hard lenses and corneal transplants.

 

[Training]

Thanks for the info. I'm finding this thing to be really annoying. When I went to Moorsfield (apparently one of the best eye hospital in the world). They kept trying different contacts. They all fell out and then decided to try and make a specially made Scleral contacts. I've seen them and they look a pain to put on every single day.

If those don't work then I'll get surgery.

My parents and friends are worried but I am just finding this to be annoying.