Another of the rare type 1's here. Coming up on 23 years.
Diabetes & Chronic Issues Support Group
- Thread starter Twilight Phoenix
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Amaris
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Keep kicking ass, TSQ.
I'm getting my fucking Joslin 25 year medal out of spite!
I'm not kicking ass at the moment, to tell the truth. I read through this whole thread and to be honest it bothered me a bit when people were talking about keeping the psychological/emotional issues separate. Because you know what? That's fucking bullshit. Right now, I feel like tearing off my CGM, throwing my pump against the wall, and letting this disease consume me. But I don't. Instead I check, correct, bolus, temp basal, check, correct, bolus, temp basal, change infusion set, change CGM, dismiss alarm, treat low, treat high, check, correct, bolus, like a fucking automaton. Right now I'm shoving all the emotion aside, because I know this dark period will end and I'll be glad I still kept my type 1 in check while it ran its course. But the two are undeniably and totally intertwined.
Type 1 diabetics have three times the rate of depression of the average population. Type 2s are nearly bad with twice the normal rates. Our rate of eating disorder is at very least 35% among females, and possibly as high as 70%. The brain is a part of the body and is affected by chronic illness -- not just because it's hard, but because it physically affects emotions and mental states.
So, here I am kicking ass by reminding everyone it's okay to feel down about your chronic illness. That's a part of it. And it is nonsense to try and keep the two separate.
Also I'm a bit drunkl so I ain't proofreading this shit or editing for tone. THESE IS MY EMOTIONS BITCHES, AND THEY VALID!
I'm not kicking ass at the moment, to tell the truth. I read through this whole thread and to be honest it bothered me a bit when people were talking about keeping the psychological/emotional issues separate. Because you know what? That's fucking bullshit. Right now, I feel like tearing off my CGM, throwing my pump against the wall, and letting this disease consume me. But I don't. Instead I check, correct, bolus, temp basal, check, correct, bolus, temp basal, change infusion set, change CGM, dismiss alarm, treat low, treat high, check, correct, bolus, like a fucking automaton. Right now I'm shoving all the emotion aside, because I know this dark period will end and I'll be glad I still kept my type 1 in check while it ran its course. But the two are undeniably and totally intertwined.
Type 1 diabetics have three times the rate of depression of the average population. Type 2s are nearly bad with twice the normal rates. Our rate of eating disorder is at very least 35% among females, and possibly as high as 70%. The brain is a part of the body and is affected by chronic illness -- not just because it's hard, but because it physically affects emotions and mental states.
So, here I am kicking ass by reminding everyone it's okay to feel down about your chronic illness. That's a part of it. And it is nonsense to try and keep the two separate.
Also I'm a bit drunkl so I ain't proofreading this shit or editing for tone. THESE IS MY EMOTIONS BITCHES, AND THEY VALID!
I will hit the twenty-year mark on 6th November this year.
I feel exactly the same, Mrs-dimesdan managed to knock my CGMS off in the night on Monday and I've not got around to putting a new one on, I'm just testing my blood a few times a day before meals to see what my Glucose levels are, because like you, I'm fed up with all the damn alerts. Knowing the data is grand and all, and knowing where I go high in the night (or low in the night) is handy, but a rest from it is nice. - and there goes my alarm for being under 20units in my pump.
I actually have an appointment later with my diabetes nurse at the hospital, so I'll bring it up, that I'm feeling more and more burnt out as the weeks and months go on.
Exactly, I've been on and off the "happy pills" for 14 years or so now.
Again, exactly.
I know how you feel @Dimesdan . Most of the time I LOVE my pump, but I admit, I'm burning out right now, and the key to avoiding true burnout might be a pump break. Since I got laid off I'll be getting new insurance and I'm going to see if they cover the Libre, or at least a Dex. If they do, I might go back to MDIs for a bit.
I really, really want a Libre!
I really, really want a Libre!
You're welcome! And welcome to this thread! I'm glad you're feeling better now with the new meds. It seems that sometimes a reset is the best therapy, both for computers and people. It drives me nuts to see my dad taking some 30 pills per day of which 75% are against the side- and combinatory-effects of the other 25%. His doc is urging him to give his permission for a complete reset but dad keeps refusing. Argh! Parents!Just wanted to share, I've never had an experience quite like this one.
Thanks for listening.
Does anyone here have experience with arthrosis? I've had it for decades in the small finger and toe joints. Now, all of a sudden I have it in my right shoulder and can't get the attack to stop - it's the 10th week now and usually my arthrosis fits last only a week. Since I have a dangerous job (I work wading in rivers and streams, some with strong currents) I can't risk taking painkillers or anything that makes me drowsy or interferes with my concentration and sense of equilibrium. Does anyone happen to know a trusty home remedy? I heard that some people swear by mashed potato poultices or squeezed cabbage leaves. Makes sense: the first are warm and the latter contain a strong anti-inflammatory in their juice. Are there any other reliable tricks I could try?
Since I saw the diabetes nurse last week and went over all my sensor and pump data, she noticed that I tend to "micro-manage" my insulin delivery and regularly over ruling my pump and thus yo-yo through the day. And because I haven't been doing that, only "topping up the tank" with the amount of insulin my pump says and letting it do its thing the rest of the week, I've had a very good week.
I'm also currently running my second of four Basal tests around this time of day to see if I have the correct Basal rate which is fun!
And since I've been on my pump, I've had two "pump holidays" of a few days to a week each. The first was for a mates stag-do and as we were playing air-soft, I didn't want the pump to get damaged, plus the hassle of the thing while drinking in a semi-unknown place. The second was the weekend after the Manchester bombings and because I flew home for a few days and did not want the hassle at security (due to the increased security here and back in the UK) of the full pat down due to my pump as whenever I have gone through the metal detector, it sets it off and I refuse to allow it to be x-rayed or for me to go through the full body scanner, which can sometimes be interesting with the less well informed staff.
Hopefully they do allow that. I'm currently using a Dex 4 as supplied by the HSE here and a Animus Vibe as supplied by the NHS. I will be getting a new pump and CGMS as Animus is withdrawing itself from the market and the HSE will be phasing them out soon.
The Libre is pretty good, (I was using them for over 18 months) it does have a few downsides though which you have to remember, most of all (and I'm sure you're aware of this) that with both high and low numbers, it's not 100% accurate, but it is good to notice trends and the like, plus you can use your mobile to scan the bugger.
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Super fun. I've been fiddling with mine because of course it's changed since I was laid off. I think I've got it down. My biggest problem is underbolusing. I have been trying for years, but after my brother died from a hypo, and after all the extreme hypos I've had, I just get too scared to take the right amount of insulin sometimes.
The Dex G6 just got FDA approval here in the US. I'm on Medtronic's Enlites at the moment, because I'm on a Medtronic pump. It does upload to my phone, which is fun because then I can make snarky memes only people with type 1 will get.
Finally good news ! I have a laser surgery appointment for my cornea ! \o/
I'm gonna be in awful pain for some days, and then it will be OVER
I'm both scared and impatient !
I'm gonna be in awful pain for some days, and then it will be OVER
I'm both scared and impatient !
congratulations!!!
I think I'd be scared, too - it's always unpleasant to have someone work near our eyes, let alone in and on them.
Good nws from me, too. For teh last weeks I experienced nerval problems: numb spots on both feets and one hand. Fortunately, this week it turned out that it's not diabetic nerve damage but only 3 pinched nerves. *pheeeeew*
I think I'd be scared, too - it's always unpleasant to have someone work near our eyes, let alone in and on them.
Good nws from me, too. For teh last weeks I experienced nerval problems: numb spots on both feets and one hand. Fortunately, this week it turned out that it's not diabetic nerve damage but only 3 pinched nerves. *pheeeeew*
Oh wow, such a relief ! I'm glad for you.
I'm hitting the twenty-year marking my diagnosis of being T1D this year and have pretty much zero complications from it, I know nerve damage is a real worry, but I am very proud I have no nerve damage, I just have a tiny amount of background retinopathy.
I just learned yesterday my father has type 2 diabetes, both his legs are at risk. I'm really not terribly surprised, he looks like he's pregnant with a 30 pound baby, and both his ankles look really huge. I hope he'll be able to be treated or do something, it'd be just awful for him if the worst happens.
Sounds like a massive lifestyle change is required and maybe more than just tablets to control it, maybe even daily injections.
I've set an appointment for my dad to get some darned false teeth. He is thin as a rail, I know he's old and older people don't eat very much and usually are thin, but I think it will help him, but I'm still nervous about it.
I'm going with him. It's a dentist near my house that has good ratings. Oddly enough it's my own dentist too.
I never looked at their ratings for myself
But I did for my dad!
He has no health issues and doesn't take any prescriptions. He's 89 years old though, so that's why I'm worried.
It's tough worrying about parents.
I'm going with him. It's a dentist near my house that has good ratings. Oddly enough it's my own dentist too.
I never looked at their ratings for myself
But I did for my dad!
He has no health issues and doesn't take any prescriptions. He's 89 years old though, so that's why I'm worried.
It's tough worrying about parents.
Yes... :,(
Definitely. They can be pretty helpful.
Found out some years back that my family has a history of diabetes. So I'm working on trying to stay healthy. About 20 pounds over... but I've been working on walking as much as I can. Pokemon Go has been a big help there. It's pretty fun and it takes my mind off of doing laps.
Whatever I can do to take the weight off.Similar threads
