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Old June 6 2013, 02:21 PM   #31
Tora Ziyal
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Re: Ziyal's medical update :)

Thanks, RJ. It is irritating. Actually, it's depressing as hell.
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Old June 6 2013, 02:27 PM   #32
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Re: Ziyal's medical update :)

Hang in there, Tora. Hopefully this is the last bump in the road for you and you have no further problems. Prayers and positive energy are sent your way.
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Old June 6 2013, 09:55 PM   #33
Savage Dragon
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Re: Ziyal's medical update :)

Damn. I just started reading this thread and was getting ready to throw in my congratulations until I read a bit more. I really hope this gets taken care of quickly!
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Old June 6 2013, 10:45 PM   #34
RJDiogenes
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Re: Ziyal's medical update :)

Tora Ziyal wrote: View Post
Thanks, RJ. It is irritating. Actually, it's depressing as hell.


So you need some cheering up then:

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Old June 6 2013, 11:16 PM   #35
Tora Ziyal
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Re: Ziyal's medical update :)

Thanks, Rhaven and TheSeeker. I don't think it's anything serious, but it's still frustrating and discouraging.

I tried to convince myself that this was pretty much all over, but the reality is that, with chordoma, there is no "over". Unlike many cancers, where if you don't have a recurrence for five years, they say you're cured, this thing can come back any time. People go six months, six years, 10, 20 or more years and suddenly have a recurrence. So it's always hanging over our heads.

And even if there's no recurrence, most of us have at least one obnoxious adverse effect from our surgery. For all that I'm feeling sorry for myself, I'm probably doing better than average on that score. Many people whose tumors were in the same location have colostomies, or have to self-catheterize for the rest of their lives instead of the six months that I did. The people whose tumors are at the other end of the spine have a whole set of lovely hearing, vision, and swallowing problems to choose from.

One guy whose wife I've become close to is having increasing cognitive problems. His tumor hasn't grown recently (a lot of the ones at the base of the skull can't be removed completely), but all the treatment to keep it that way is catching up with him.

It's just a damn nasty disease!

I've started doing some volunteer work, just one hour a month, reading to pre-K kids at the school up the street. Today was my second time. If the plastic surgeon had been able to see me today like I'd hoped (he's in clinic only a half day a week), I would've had to cancel. Ironically, the only thing on my calendar next week was also on Thursday afternoon, so I had to reschedule that. I was hoping to find a paid job a few hours a week, but this not being able to plan ahead nonsense is going to put a real crimp in that.

Sorry. If you read it all, THANKS!

Last edited by Tora Ziyal; June 6 2013 at 11:32 PM.
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Old June 6 2013, 11:34 PM   #36
Tora Ziyal
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Re: Ziyal's medical update :)

RJDiogenes wrote: View Post
Tora Ziyal wrote: View Post
Thanks, RJ. It is irritating. Actually, it's depressing as hell.


So you need some cheering up then:

Aw, a kitty arrived while I was writing! Thank you, RJ.
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Old June 7 2013, 09:39 AM   #37
RJDiogenes
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Re: Ziyal's medical update :)

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Old June 10 2013, 04:34 PM   #38
Tora Ziyal
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Re: Ziyal's medical update :)

My first appointment with the physical therapist went well. He was really impressed by what good shape I'm in, considering all that I've been through. But he's still going to make me work really hard -- you know, work my ass off -- which is what I want.

On the other hand, I'm back to those damn intermittent, low-grade fevers.
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Old June 10 2013, 10:48 PM   #39
RJDiogenes
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Re: Ziyal's medical update :)

Did the PT have any insight into the issue you're being seen for on Thursday?
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Old June 10 2013, 11:21 PM   #40
Tora Ziyal
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Re: Ziyal's medical update :)

No, butt I didn't expect him to.
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Old June 10 2013, 11:32 PM   #41
Mr. Laser Beam
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Re: Ziyal's medical update :)

I hereby abstain from this particular pun.
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Old June 10 2013, 11:38 PM   #42
Tora Ziyal
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Re: Ziyal's medical update :)

No need to abstain, unless you really want to.
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Old June 11 2013, 12:38 AM   #43
Gary7
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Re: Ziyal's medical update :)

I am very happy to hear of the positive improvement in your health, Ziyal! How devious those infections can be. You are so fortunate how it was discovered early enough to dispense with it before things got even worse, like turning into a chronic condition. Anyway, welcome back to better health and I hope you get those fevers licked soon!
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Old June 11 2013, 01:34 AM   #44
Tora Ziyal
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Re: Ziyal's medical update :)

Thanks, Gary7. Unfortunately, I suspect that the fevers mean that the infection -- which, by the way, was not discovered "early" by any stretch of the imagination -- has returned. Or perhaps just come back out of hiding. As you said, devious. The fevers are following the same pattern as they did before.
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Old June 11 2013, 02:18 AM   #45
Shanndee
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Re: Ziyal's medical update :)

I hope the infection/fevers can be cleared soon Ziyal. Take care.
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